(repost of original post in 2010 on Posterous that terminated their service in 2012)
After a long period of setting up conferences, Pecha Kucha Nights TEDx-es etc where i tried over and over again to offer the stage to patients in one way or the other, i was reflecting on that a bit.
We’ve succeeded in that in almost every aspect of it. Not only on our Pecha Kucha Nights, or TEDxMaastricht conference with 5 patients (so 1/5th) just as our next one on April 2nd will have, on our TEDxRadboudU, of course our e-patientsbootcamp was RUN by patients, just like the night after where we invited physicians to bring their patients with them.
And at our Radboud REshape Academy we will be happy to have patients for free in the audience, next to fact that in every Masterclass will start with a patient story told by a patient.
Result of that i really can not imagine a conference anymore about healthcare with a NO-SHOW approach of patients. That is :
no patient IN the program,
no patient ON the stage or
no patient IN the audience.
As patients that is, it is too easy IMHO to state :
“well we are all patients” , “it is all about patients” or this one : “we KNOW what our patients want” well …..YOU DON’T.
Ever since i have appointed CLO (Chief Listening Officer into my REshape team,, we find on a day-today basis that you don’t. And that completely logical if one has only 7 minutes to spare with your patient.
Let’s stop talking about patients as if it where ” a third-person word”, as my friend e-patientDave states often.
This is just like people at your work are having a meeting about you…. without you, right ? These conference to me are what i call NO-SHOW-Conferences.
I’ve been around lately keynoting on conferences on this little blue marble, and over a year mostly start with the most important question : http://www.slideshare.net/lucienengelen/mhealth-conference-dubai-2010
Thinking about this lately there is only one right thing to do : NO-SHOW to these conferences!
And it’s time for change, time to step-up, or may be step down actually.
And that is precisely what i will be doing as of tomorrow, and wil be completing by April next, after addressing and stretching this whenever i can over the course of the upcomming year.
I will NO-SHOW on healthcare conferences that do not add patients TO or IN their program or invite them IN the audience also I will no longer speak at NO-SHOW conferences.
I ask you to do the same, only then we can make a statement and really change healthcare. It will take some time, including in our own surroundings, but just let’s start.
Start listening to (your) patients or to put it like one of our patients (mr Rene Tabak) told us at TEDxRadboudU recently :
“Do not look at me, but SEE me. Do not listen to me but HEAR me”
Conference organizers could use the logo below to state the support the NO-SHOW Patients Act so everyone can see that this is a Patients Included: conference.
Already supported i.e. by these great conferences : (send us a link in the comments to your conference if your support the Patients-Included-Act so would could update it from time to time)
It is a trademarked logo, and can be used in the context as described above, for non-commercial purposes.