Thursday April 28th, 2011 a great woman passed away : @ashia_hunkar is no more.
I never met her personaly, but through her sister Aldith, and reading her blog i know about her ambition, drive and passion fighting her disease. She was what we call a e-patient : empowered, engaged, emancipated and an expert about her disease.
During preparations Aldith and i talked a lot about e-patients and the this that have to change in healthcare. Often Aldith mentioned examples from her sister Aisha, and i asked her to tell about them in the opening. In that way Aisha was with us, during the whole day
Her Sister Aldith talked about her during the opening and the closing ceremony.