Everyone should know the power that comes from patient blogs. On a daily basis in our own Radboud University Nijmegen Medical Centre, people are writing, sharing, asking about the things they encounter, experience and feel.
Today i read the posting of Gaston, the father of Emilie, his daughter who has cancer and as of today is bold. My heart cries (google translation), he wrote, and reading his post and blog (pointed to by @punkmedia) at that point this “big guy” here is once again with two feet on the ground. Silence, this isn’t supposed to be this way for a little kid.
Every healthcare professional should read at least once a day an patient-blog, wether or not from his own facility, just to constantly understand what com-passion is al about. Com-passion is not feeling
As for Emilie; i hope she’ll get well of course. I’m certain her doc’s and other staff are doing all they can.
Her parents Gaston and Cecile : i would like praise you Heroes for the “guts” to share in a weblog, not only for good advices, and helping other patients and their family or informal care. Also for sharing your thoughts and emotions. But also to help Healthcare professionals reading what’s at stake, what’s going on, and what’s important. And yes, many many Healthcare professionals don’t need that, but “some” do, that’s worth it.
Only then we can improve healthcare besides research, and medicine into Participatory Healthcare.